Friday, May 15, 2009

Sistah Shines, Signs and Sings



I'm gonna watch you shine
I'm gonna watch you grow
I'm gonna paint a sign
So you'll always know
As long as 1 and 1 make 2
There could never be a sister
loves a sister more than I love you


Most of these words are by Paul Simon as found on the Wild Thornberries movie soundtrack. But as the song is actually about the love a father has for his daughter, Cate took a few liberties with the lyrics. The original is simple and sweet, a father singing to his daughter, first assuring her that she can count on dad, then moving on to assure her that more importantly, she can count on herself.

During our school day morning bustle today, I brusquely pushed open their bedroom door hearing music inside. Addie sat on Cate's bed, upturned face, watching riveted in rapt and motionless awe, fresh-from-sleep half smile on her lips, full smile in her eyes. In her jammies, Cate stood on the other end of her bed, singing along to this song, ratcheting up the volume during her lyric changes, ensuring her partner, her love, her only sister, understood the message meant for her.

As much as I wanted to step forward - insinuate myself into this sweet scene, stretch it out, engineer it, even break off a chunk for myself (which I realize I am doing by putting it here) - I silently stepped back and closed the door, leaving the sisters to themselves.

Wednesday, May 13, 2009

And Now, Back to the Program Already in Progress

After that brief interlude with lament, we return to the regularly scheduled program.

Addie consistently identified the colors yellow, orange, blue and purple at school this week. Again, we knew she knew these colors and more already, but it's a big processing job for her to separate a thing from something that describes a thing. After work at home and school, everyone's about ready to say she knows her colors. Knowing them was not the mountain, proving that she knows them was.

Scale the Color Id Mountain.
Check.

In even better news, Addie has another friend over right now. Interestingly, this is the first time she's had a girlfriend over. It's been all about boys up to this point. And we are having a blast. I am sitting here typing this only to restrain myself from getting in this poor sweet girl's grill for a bit. It's hard for me not to ask a million questions about what Madeline does for fun, what they worked on in P.E., if she likes Art class... A regular feast of responses. I have to resist gorging myself.

This darling Madaline is utterly delightful and is bringing back all manner of memories from my own Cate's 4th year. Everything is a remarkable cooincidence - wow! I have 2 friends named Ava. Hey! This doll looks like my doll! Cool! Addie has a little bed! Look, Addie's mom - she LOVES her sandwich! I love mine, too! You like to dance? I like to dance! Addie said grr! I can say grr!

Addie is still into the parallel play, especially in her domain, but every once in a while she shimmies up to Madeline to giggle in her ear or to bear hug her. Madeline giggles back or hugs back every time.

But my favorite thing about this in-progress friendship: Madeline has her own nickname for Addie. She refers to her as Addie when she talks to me, but when she talks directly to Addie (which is quite often, despite the lack of verbal response from Addie herself), she calls her Ad. Ad, want to play with this little dollhouse together? You like balloons too, Ad? Aaa-ad! Come upstairs with me!

Again, that's between these 2 pals - this term of endearment, this intimate and familiar shortening of Addison's name.

Addie has a friend over. All is as it should be.


Post-play date photo: Rainbow/Crazy Hair Day at school, playing drums with pencils and her new hand-me-down-from-cousin-Audrey vanity.


(update: Madeline cried when her mom came to pick her up. She wasn't ready to go.)

Friday, May 8, 2009

Mother's Day Gift: The Shaft

I just got the shaft. Ripped off, cheated like I cannot recall having been shafted in the past.

Last night I carefully selected my "business casual" outfit as the invitation required. I took out Addie's fanciest dress and rubbed at the little ice cream marks she acquired at her cousin's first communion celebration last weekend. Today we intended to look a lovely as possible.

After Addie and I were all polished up this morning and I dropped the girls off at school, I had an hour to kill before arriving at the junior kindergarten Mother's Day Tea at Addie's school. I reminisced about the first and only other such event I attended 5 years ago when Cate and her class hosted. I remember nearly every minute of it - the kids riled up to have their mothers at school, yet trying their best to keep with the prim and reserved theme of the celebration. I remember the songs they sang at choppy speeds and varied volumes and I remember the first time I was presented with the shrinky dink pin she made that I still wear on my purple trench coat. I remember chatting with the mothers beforehand as we awaited our escorts and getting to know them better as our tea and muffins were served, laughing and marveling at all the things that make us one as mothers.

Today's event with Addie was front loaded with that memory, with the fact that it would be my last opportunity for tea at school as she is my youngest. She did so spectacular at the winter concert, that I dared to form a few expectations this time. There were things programmed into her device that I was to resist peeking at. I expected to cry, to be torn between taking photos and just soaking it in without electronics between me and my amazing girl. I looked forward to chatting with some moms I haven't had much chance to get to know this year.

When we arrived, Addie came to get me in the hall, as the other kids got their mothers. But Addie headed for the door instead of back to her classroom. She thought it was time to go. Finally, I coaxed her back to the room.

We were to sit at the little tables the kids sit at and put on our paper MOM crowns that they worked on for us (the symmetry and organization of jewels on mine made it clear that Addie had little to do with making it). When I found our spot, I saw Addie's special ed teacher and her speech therapist talking and adjusting her communication device. I thought - wow, this is going to be some shindig, if she has not one, but 2 assistants for this.

Our table was right next to the buffet of muffins and cookies. Very difficult for Addie to resist. She flirted with taking one and raced around the room a bit as the other mother/kindergartner pairs found their spots. I managed to get her settled in on my lap, but could tell by her fidgeting, that this would be a short-lived position. When she wrestled away, things were beginning. I stayed in my seat.

Addie left the room. The special ed teacher and the SLP were gone. It was then that I realized with a start that I was on duty. I jumped up and left the room to go find Addie in the hall, missing the welcome the classroom teacher was giving at that moment.

The kids were then lined up to sing their songs. Addie was the leader - she was to hit the button with the recorded song on her device to cue the other kids to begin. But no one had turned the volume up, so the kids did not hear it. The teacher had to start them off. So while Addie still hit the button, it had no purpose, it did not start the singing off. It became just a gesture.

After the songs there was a short slide show, which I missed most of as I tried to distract Addie to stay and watch, to keep the humming and growling she does a bit quieter so the other moms could work up the tears of sentiment that I had planned on shedding.

During the rest of it, I chased Addie, took things out of her hands, tried to engage her in something that would not have her getting in the way of others posing for photos, that would not have her leaving the room, that would be safe for her.

She may have practiced the songs with the class and teachers, but no one practiced with her what she should do when all routine is routed out of the morning and replaced with what seems like a party, but a party with a lot of rules that weren't adapted for her understanding. She did not have a clue what to do. And though Addie has an aide with her at all times at school, this hour was deemed aide free as I discovered on my own. I guess because I was going to be there.

So I didn't cry any tears of pride or love or general gush. I didn't get to know other mothers, I didn't etch another sweet memory to line up next to the first one.

I sweated, I chased, I hushed, I clenched my jaw...all in front of the other mothers. Where I expected to chat about things we have in common, instead I demonstrated all that's different for us to the lot of them at once.

In short, it sucked. For both Addie and I.

I trust I will find healthy perspective of this eventually, but I'm not even going to try looking for it for a few hours.

Monday, May 4, 2009

DynaVox and Augie Nieto in the News Again

Like the Today show a few weeks ago, Fox News did a piece on Augie Nieto and his DynaVox VMax with eyegaze technology. A VP at DynaVox shows some of the units they make - the middle one in blue is what Addie has, though hers is lime green.

I look at Augie's empire each early morning I hit the gym, glancing at the Life Fitness logo repeatedly as I work through my strength training circuit. I take in the DynaVox logo each time my previously wordless child makes her thinking clear to others.

Two companies impacting my own life in hopeful ways.

Check it out by clicking below on Augie's name. Then send the link to at least 2 people you know that you think didn't realize that such sophisticated communication technology existed. Ask those 2 to do the same.

Augie Nieto